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arXiv 1711.00546cs.CY
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医疗保健中的隐私和同意管理:关注新兴数据源

A Review of Privacy and Consent Management in Healthcare: A Focus on Emerging Data Sources

Muhammad Rizwan Asghar, TzeHowe Lee, Mirza Mansoor Baig, Ehsan Ullah, Giovanni Russello, Gillian Dobbie

摘要:

新数据源(NDS)在医疗保健领域的出现正在数据可用性、存储和访问方面彻底改变传统的电子健康记录。临床医生越来越多地使用NDS来构建患者健康状况的虚拟整体图像。这项研究的重点是审查和分析目前的立法和隐私规则可供医疗保健专业人员。本项目中的NDS指的是并包括患者生成的健康数据、消费者设备数据、可穿戴健康和健身数据以及来自社交媒体的数据。该项目审查了新西兰、澳大利亚、欧洲联盟和美国的法律和监管要求,以确定关于使用NDS的现有机制的基本现实。我们的研究结果是建议所需的更改和增强,以更好地为当前不断发展的数据驱动医疗保健领域的NDS和应用程序的“海啸”做好准备,以及精确或个性化的健康计划,如新西兰的精确驱动健康(PDH)。

英文摘要:

The emergence of New Data Sources (NDS) in healthcare is revolutionising traditional electronic health records in terms of data availability, storage, and access. Increasingly, clinicians are using NDS to build a virtual holistic image of a patient's health condition. This research is focused on a review and analysis of the current legislation and privacy rules available for healthcare professionals. NDS in this project refers to and includes patient-generated health data, consumer device data, wearable health and fitness data, and data from social media. This project reviewed legal and regulatory requirements for New Zealand, Australia, the European Union, and the United States to establish the ground reality of existing mechanisms in place concerning the use of NDS. The outcome of our research is to recommend changes and enhancements required to better prepare for the 'tsunami' of NDS and applications in the currently evolving data-driven healthcare area and precision or personalised health initiatives such as Precision Driven Health (PDH) in New Zealand.

机构、总结、中文摘要均由AI分析而来,可能存在错误,请以论文正文为准。

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