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arXiv 2201.08718cs.HC
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电子肿瘤治疗中的健康素养:挑战与策略

Health literacy in e-oncology care: challenges and strategies

Hajar Hasannejadasl, Cheryl Roumen, Yolba Smit, Andre Dekker, Rianne Fijten

摘要:

鉴于健康素养(HL)对患者结局的影响,有限的健康素养(LHL)是全球癌症护理的主要障碍。HL是指个人能够以积极参与健康决策的方式获取,处理和理解信息的程度。此前的研究发现,发达国家近一半的人口在理解健康相关信息方面存在困难。随着肿瘤学逐渐转向共享决策(SDM)过程和数字化转型,处理低HL问题的需求变得更加重要。肿瘤学中的决策往往伴随着对患者生命的相当大的影响,这要求患者了解复杂的信息,并能够通过考虑自己的价值来比较治疗方法。患者对健康信息的感知受到多种因素的影响,包括患者的特征和向患者提供信息的方式。根据研究结果,识别低HL患者并使用简单的数据可视化是帮助患者和临床医生处理LHL的最佳实践。此外,在患者决策辅助工具(PDA)等工具中准备可靠的信息来源,以及让HL调解员参与咨询会议,有助于患者理解复杂的信息。

英文摘要:

Given the impact of health literacy (HL) on patients outcomes, limited health literacy (LHL) is a major barrier in cancer care globally. HL refers to the degree in which an individual is able to acquire, process and comprehend information in a way to be actively involved in their health decisions. Previous research found that almost half of the population in developed countries have difficulties in understanding health related information. With the gradual shift toward the shared decision making (SDM) process and digital transformation in oncology, the need for dealing with low HL issues is more crucial. Decision making in oncology is often accompanied by considerable consequences on patients lives, which requires patients to understand complex information and be able to compare treatment methods by considering their own values. How health information is perceived by patients is influenced by various factors including patients characteristics and the way information is presented to patients. Based on the findings, identifying patients with low HL and using simple data visualizations are the best practice to help patients and clinicians in dealing with LHL. Furthermore, preparing reliable sources of information in tools such as patient decision aids (PDA), as well as involving HL mediators in consultation sessions supports patients to make sense of complex information.

机构、总结、中文摘要均由AI分析而来,可能存在错误,请以论文正文为准。

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