AI 中文总结
本研究通过对13个先天性心脏病儿童家庭开展一周的Octo混合实体-数字教育工具居家部署，探究其对儿童健康素养、家庭沟通的作用，为Octo优化及临床部署提供依据。
AI 中文摘要
患有先天性心脏病（CHD）的儿童及其家庭在临床环境之外的护理管理中，常面临教育、情感和沟通方面的挑战。然而，许多儿科健康干预研究依赖照料者介导的反馈或结构化评估，限制了对儿童日常使用中直接体验的了解。我们开展了为期一周的Octo居家部署研究，Octo是一款混合实体-数字教育工具，旨在提升儿童健康素养并减轻家长的教育负担。研究将参与式设计方法延伸至部署环节，将儿童友好型反思活动、绘画式反馈及情绪追踪融入家庭日常流程。我们招募了13个患有CHD的儿童家庭参与部署。初步结果显示，儿童在Octo的实体与数字组件相关知识上有所收获，在游戏中表现出情感依恋与自信，并就自身病情开展了家庭协作沟通。这些发现将指导Octo的后续优化，并为未来跨护理场景的临床部署提供参考。
英文摘要
Children with congenital heart disease (CHD) and their families often navigate educational, emotional, and communication challenges regarding care management outside clinical settings. However, many pediatric health intervention studies rely on caregiver-mediated feedback or structured evaluations, limiting visibility into children's direct experiences during everyday use. We present a one-week at-home deployment study of Octo, a hybrid physical-digital educational tool designed to support children's health literacy and reduce parental educational burden. Extending participatory design approaches into deployment, the study embedded child-friendly reflection activities, drawing-based feedback, and emotional tracking into family routines. We conducted the deployment with 13 families of children diagnosed with CHD. Preliminary findings suggest that children gained understanding across Octo's physical and digital components, expressed emotional attachment and confidence through play, and engaged in collaborative family communication about their condition. These findings will guide future refinement of Octo and inform future clinical deployment across care settings.
