癫痫在线社会支持：r/癫痫社区中共同的主题与挑战特征
Epilepsy Online Social Support: Characterizing Topics and Challenges Shared in the r/Epilepsy Community
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中文总结 AI 辅助
研究通过收集r/癫痫子版块大量帖子，经多种分析发现癫痫患者社区的五个主要主题及心理语言学特征，有助于理解其挑战与支持需求，为相关技术设计提供参考。
中文摘要 AI 辅助
癫痫是最常见的神经疾病之一，癫痫患者常利用社交媒体。为更好理解癫痫患者在特定社区的主题及关切，以设计技术助力癫痫自我管理，研究收集了23944条r/癫痫子版块帖子并进行主题建模、主题及心理语言学分析。发现五个主要主题：症状与诱因、治疗与医疗体验、日常功能、癫痫发作活动、对患者的支持。还突出了不同主题帖子的顶级心理语言学特征。贡献在于理解在线癫痫社区挑战及社会支持需求，为技术设计提供启示。
英文摘要
Epilepsy is one of the most common neurological conditions, and people living with epilepsy (PLWE) often use social media as a resource. However, a comprehensive understanding of the topics represented in epilepsy-specific communities where PLWE may be more honest is essential to designing better technologies to address epilepsy self-management. To understand the main topics and concerns of PLWE, we collected 23,944 r/Epilepsy subreddit posts and performed topic modeling, thematic, and psycho-linguistic analyses. We found five major themes for those topics: symptoms and triggers (e.g., mental health and memory, sleep/nocturnal, and photosensitivity), treatment and healthcare experience (e.g., medication, understanding epilepsy), daily functions ( e.g., perceived level of independence and finances), seizure activity (e.g., auras and ictal symptoms), and support for PLWE (assisting PLWE and support for PLWE). We highlight the top psycho-linguistic characteristics of posts across different topics. Our contributions include providing an understanding of the challenges of an online epilepsy community and their social support needs, and implications for designing technologies.
