“我和你一样是人”:交叉性、神经分歧的生活经验为无障碍研究带来了什么
"I Am Human, Just Like You": What Intersectional, Neurodivergent Lived Experiences Bring to Accessibility Research
AI总结:
本文通过批判性自我民族志和 Data Feminism 视角,提出三条重新定义神经分歧的交叉性原则,并为无障碍研究弥合 HCI 理论与实践差距提供具体建议。
摘要:
神经分歧日益普遍,促使社会更加认识到神经多样性的重要性。然而,社会对神经分歧的看法仍然主要偏向负面。借鉴 Critical Disability Studies,无障碍研究人员揭示了 neuronormative 假设如何主导 HCI。尽管有这些指导,神经分歧者和残障人士在技术研究中仍被边缘化。特别是,交叉性身份在 HCI 神经分歧研究中基本缺席。本文中,我以学术研究界局外人的视角,运用批判性自我民族志,分析自己在权力、特权与压迫系统中逐步理解、接受并珍视自身神经分歧的经历。以 Data Feminism 作为理解交叉性的实用指南,我提出三条重新定义神经分歧的原则,以更包容交叉性经验:(1) 神经分歧是功能性差异,而非缺陷;(2) 神经分歧性残障是摩擦时刻,而非静态标签;(3) 神经分歧无障碍是协作实践,而非单方面解决方案。随后,我以同样的交叉性视角,在现有 HCI 研究语境中讨论这些原则。最后,我提出三项建议,说明无障碍研究如何在未来的工作中应用这些原则,以弥合 HCI 神经分歧研究中理论与实践的差距。
英文摘要:
The increasing prevalence of neurodivergence has led society to give greater recognition to the importance of neurodiversity. Yet societal perceptions of neurodivergence continue to be predominantly negative. Drawing on Critical Disability Studies, accessibility researchers have demonstrated how neuronormative assumptions dominate HCI. Despite their guidance, neurodivergent and disabled individuals are still marginalized in technology research. In particular, intersectional identities remain largely absent from HCI neurodivergence research. In this paper, I share my perspective as an outsider of the academic research community: I use critical autoethnography to analyze my experiences of coming to understand, accept, and value my neurodivergence within systems of power, privilege, and oppression. Using Data Feminism as an accessible and practical guide to intersectionality, I derive three tenets for reconceptualizing neurodivergence to be more inclusive of intersectional experiences: (1) neurodivergence is a functional difference, not a deficit; (2) neurodivergent disability is a moment of friction, not a static label; and (3) neurodivergence accessibility is a collaborative practice, not a one-sided solution. Then, I discuss the tenets in the context of existing HCI research, applying the same intersectional lens. Finally, I offer three suggestions for how accessibility research can apply these tenets in future work, to bridge the gap between accessibility theory and practice in HCI neurodivergence research
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