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arXiv 2404.04444cs.HC
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马拉维 HIV 客户对数字健康的看法

HIV Client Perspectives on Digital Health in Malawi

Lisa Orii, Caryl Feldacker, Jacqueline Madalitso Huwa, Agness Thawani, Evelyn Viola, Christine Kiruthu-Kamamia, Odala Sande, Hannock Tweya, Richard Anderson

AI总结:

本研究通过焦点小组调查马拉维 ART 客户对 eHealth 数据流、安全与隐私的认知及床旁技术接受度,并为资源有限环境构建可信数字健康系统提出建议。

摘要:

电子健康(eHealth)在推动中低收入国家 HIV 护理方面具有巨大潜力。鉴于 HIV 相关信息的敏感性以及意外泄露 HIV 感染状态所带来的风险,应当考察客户对 eHealth 应用的隐私认知,以开发以客户为中心的技术。通过与来自马拉维公共 HIV 护理项目 Lighthouse Trust 的抗逆转录病毒治疗(ART)客户开展焦点小组讨论,我们探究了他们对数据安全和隐私的看法,包括他们对数据流的理解,以及对多个数据使用层面中数据保密性的担忧。研究结果突显了影响 ART 客户日常选择的广泛隐私顾虑、客户对马拉维卫生系统的信任,以及他们对 HIV 护理中所用床旁(point-of-care)技术的接受度和熟悉程度。基于这些发现,我们为在资源有限、隐私法规尚不成熟且具有采取行动保护客户数据的政治意愿的中低收入国家建设稳健数字健康系统提供了建议。

英文摘要:

eHealth has strong potential to advance HIV care in low- and middle-income countries. Given the sensitivity of HIV-related information and the risks associated with unintended HIV status disclosure, clients' privacy perceptions towards eHealth applications should be examined to develop client-centered technologies. Through focus group discussions with antiretroviral therapy (ART) clients from Lighthouse Trust, Malawi's public HIV care program, we explored perceptions of data security and privacy, including their understanding of data flow and their concerns about data confidentiality across several layers of data use. Our findings highlight the broad privacy concerns that affect ART clients' day-to-day choices, clients' trust in Malawi's health system, and their acceptance of, and familiarity with, point-of-care technologies used in HIV care. Based on our findings, we provide recommendations for building robust digital health systems in low- and middle-income countries with limited resources, nascent privacy regulations, and political will to take action to protect client data.

机构、总结、中文摘要均由AI分析而来,可能存在错误,请以论文正文为准。

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