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arXiv 2402.01040cs.HC
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照料者与痴呆症患者日常听音乐及使用音乐技术的情况:调查与焦点小组研究

Everyday Uses of Music Listening and Music Technologies by Caregivers and People with Dementia: Survey and Focus Group Study

Dianna Vidas, Romina Carrasco, Ryan M. Kelly, Jenny Waycott, Jeanette Tamplin, Kate McMahon, Libby M. Flynn, Phoebe A. Stretton-Smith, Tanara Vieira Sousa, Felicity A. Baker

AI总结:

本研究通过调查与焦点小组结合的混合方法,探究痴呆症患者及其照料者日常护理中音乐及音乐技术的使用情况与挑战,明确了音乐的多重作用与技术使用障碍,为适配痴呆症护理场景的音乐技术设计提供方向。

摘要:

音乐是一种有价值的非药物工具,可为痴呆症患者带来益处,目前学界有兴趣设计支持痴呆症护理中音乐使用的技术。为确保音乐技术的设计能恰当地为照料者和痴呆症患者提供支持,仍需更好地了解当前家庭日常护理中音乐的使用方式。本研究旨在了解痴呆症患者及其照料者在日常护理中如何使用音乐技术,以及他们在使用音乐和技术时遇到的挑战。本研究采用混合方法设计:共77名照料者和痴呆症患者完成了调查,以了解他们对音乐和技术的使用情况;其中18名调查受访者(12名家庭照料者、6名痴呆症患者)参与了焦点小组,分享他们在护理中使用音乐和技术的体验。研究采用反思性主题分析法对转录文本进行分析。大多数调查受访者在日常生活中经常使用音乐,他们使用的音乐技术包括CD、收音机和流媒体服务等多种类型。焦点小组揭示了日常护理中音乐技术的益处与挑战:参与者使用音乐和音乐技术来调节情绪、带来愉悦感、促进社交联系、激发回忆、维持诊断前后的生活连续性,以及减轻照料工作的难度。护理中使用音乐技术的挑战包括:难以跟上技术迭代的步伐,以及痴呆症患者表现出的技术使用自我效能感较低。显然,痴呆症患者及其照料者会使用音乐技术来满足日常护理需求。研究结果表明,未来有机会设计相关技术,让人们更便捷地获取音乐,并为痴呆症患者的娱乐性、治疗性听音乐及基于音乐的活动提供支持。

英文摘要:

Music is a valuable non-pharmacological tool that provides benefits for people with dementia, and there is interest in designing technologies to support music use in dementia care. To ensure music technologies are appropriately designed for supporting caregivers and people living with dementia, there remains a need to better understand how music is currently used in everyday care at home. We aimed to understand how people with dementia and their caregivers use music technologies in everyday caring, as well as challenges they experience using music and technology. This study used a mixed methods design. A survey was completed by 77 caregivers and people with dementia to understand their use of music and technology. Of these, 18 survey respondents (12 family caregivers, 6 people living with dementia) participated in focus groups about their experiences of using music and technology in care. Transcripts were analysed with reflexive thematic analysis. Most survey respondents used music often in their daily lives, reporting a range of music technologies such as CDs, radio, and streaming. Focus groups highlighted benefits and challenges of music technologies in everyday care. Participants used music and music technologies to regulate mood, provide joy, facilitate social connection, encourage reminiscence, provide continuity before and after diagnosis, and to make caregiving easier. Challenges of using music technology in care included difficulties staying up to date with evolving technology, and low self-efficacy for technology use expressed by people living with dementia. Evidently, people living with dementia and their caregivers use music technologies to support their everyday care needs. Results suggest opportunities to design technologies enabling easier access to music and supporting people living with dementia with recreational and therapeutic music listening and music-based activities.

机构、总结、中文摘要均由AI分析而来,可能存在错误,请以论文正文为准。

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