西班牙裔中风患者技术设计中的社会文化因素
Social-Cultural Factors in the Design of Technology for Hispanic People with Stroke
摘要:
在美国,中风是导致严重、长期残疾的主要原因。西班牙裔和拉丁裔社区的卒中患者与一般卒中人群之间的卒中患病率和结局存在差异。目前的中风技术-旨在改善生活质量,使中风患者达到最具功能的独立状态-对一般中风人群显示出有希望的结果,但未能缩小服务不足的西班牙裔和拉丁裔中风患者的恢复结果差距。以前在健康教育,数字健康和HRI方面的工作通过纳入社会文化因素改善了人类健康结果,但不是中风。在这份意见书中,我们的目的是证明在西班牙裔和拉丁裔社区的中风技术设计中考虑到独特的文化因素。我们回顾了成功的文化适当的干预措施的例子,并提出设计考虑因素(互利的社区协商,事先容纳的障碍,文化建设,并纳入家庭教育),以提供更多的文化适当的西班牙裔和拉丁裔中风技术的设计,并减少差距。
英文摘要:
Stroke is a leading cause of serious, long-term disability in the United States. There exist disparities in both stroke prevalence and outcomes between people with stroke in Hispanic and Latinx communities and the general stroke population. Current stroke technology - which aims to improve quality of life and bring people with stroke to the most functional, independent state possible - has shown promising results for the general stroke population, but has failed to close the recovery outcome gap for underserved Hispanic and Latinx people with stroke. Previous work in health education, digital health, and HRI has improved human health outcomes by incorporating social-cultural factors, though not for stroke. In this position paper, we aim to justify accounting for unique cultural factors in stroke technology design for the Hispanic and Latinx community. We review examples of successful culturally appropriate interventions and suggest design considerations (mutually beneficial community consultation, accommodating for barriers beforehand, building on culture, and incorporating education of the family) to provide more culturally appropriate design of Hispanic and Latinx stroke technology and reduce the disparity gap.
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